Nocicnatrium, a drug for the treatment of spinal muscular dystrophy (SMA), costs 700,000 yuan to inject. Why is it so expensive?

In the United States, the cost of Nocinak Sodium Injection is $6.5438+RMB 2,500 (about RMB 870,000). Compared with Noxii sodium injection, which needs repeated injections every year, Zogensma, a subsidiary of Novartis, can complete the treatment at one time, but the price of Zogen SMA is also regarded as "sky-high", reaching as high as 26.5438 million US dollars (about RMB/kloc-0.50 million yuan), and the drug is only listed in the European Union, the United States and Japan.

Recently, Ouyang Chunlan, the mother of Guangdong Province, submitted an application for information disclosure to the State Administration of Medical Supplies after seeing a news of "seeking medicine", hoping to know about the procurement method and domestic pricing basis of drugs for treating spinal muscular atrophy (hereinafter referred to as "SMA") and 700,000 yuan of Nocicnat sodium injection, which immediately attracted the attention and heated discussion of many netizens.

Government information disclosure application form:

According to the application, Ouyang Chunlan requested to disclose the purchase contract for the introduction of Nocicina sodium injection, the pricing basis and calculation of domestic sales price, the inventory quantity and distribution of Nocicina sodium injection and other information.

According to Red Star News, spinal muscular dystrophy is a rare hereditary neuromuscular disease, also known as "the killer of hereditary diseases in infants". SAM can be divided into SMA-I type, SMA-II type, SMA-III type and SMA-I type IV type according to the onset age and exercise mileage. Without treatment, most SMA-I children will not survive to the age of two. At present, the only drug used to treat this disease in China is Nocinasheng Sodium Injection.

It is also expensive in developed countries:

Ouyang Chunlan told the Red Star journalist that she saw a message a few days ago that a baby who had just turned 1 in Huaihua, Hunan Province was dying, but the medicine that could treat the child was very expensive.

"This child got SMA, and the hospital recommended the specific drug Nose Sodium, but the drug price was as high as 700,000 yuan. Some netizens learned from Australia that the local price of the drug is only 4 1 Australian dollar, which is about RMB 280 yuan. " In order to confirm the price, Ouyang Chunlan mailed an application for information disclosure to the State Administration of Pharmaceutical Products on the morning of August 5.

Refer to the above contents: Baidu Encyclopedia-Nocinasheng Sodium Injection