The little girl has an abnormal reaction after vaccination. How to pay for millions of medical expenses?
These cavities come from three surgical operations. Once the tumor is removed, once the biopsy is performed (biopsy refers to the technique of cutting, clamping or puncturing the diseased tissue from the patient for pathological examination-reporter's note), once the ulcer is removed.
Tuberculosis and repeated infections from childhood make every operation a difficult start for Lin: the wound will fester uncontrollably due to the change of environment after operation, and it will last for nearly a year, and he will go to the hospital to change his dressing and clean it once every two or three months on average.
The young chest was gradually hollowed out, and the cold instruments reached in again and again, even touching the bones several times. This is a rare painful moment for Lin, who has always been lively. "It takes two people to hold her down to change the dressing." Mother Wu Pingli said that every time her daughter's clothes are always soaked with sweat.
Seven years ago, Lin, who just had a full moon, received a BCG vaccine. This is a vaccine to prevent tuberculosis. It belongs to the first-class vaccine "* * *" and is provided to citizens free of charge. Citizens should be vaccinated according to the provisions of * * * ".
Unexpectedly, a month later, symptoms such as fever and itching began to appear at the inoculation position of her left arm, and then she caught a cold repeatedly. Three months after inoculation, her family found a lump under her left armpit. Before long, the lump grew from soybean to egg, and pus oozed from time to time.
At the age of 1, Lin underwent the first resection. But just one month later, a new lump grew near the wound. Since then, every time I catch a cold and have a fever, it will fester around the lump. In order to deal with these vague pus, Lin's parents had to take her to the hospital again and again.
Enduring and adapting to the pain has become her "routine". In the worst case, after clavicle drainage, Lin could only lie on the bed with his neck tilted stiffly.
At the beginning, Lin was diagnosed as simple "inflammation" and "reactive hyperplasia of lymph nodes"; Later, the result of "lymph node tuberculosis" was obtained.
From 2065438 to May 6th, 2005, the investigation and diagnosis report made by the expert group on the investigation and diagnosis of the abnormal reaction of vaccination in Xixia County, Henan Province showed that the clinical diagnosis of forest disease was "systemic disseminated BCG infection", which belonged to the abnormal reaction of vaccination, and the degree of clinical damage was determined as Grade II B.
Abnormal reaction of vaccination refers to the adverse drug reaction caused by qualified vaccine during or after the implementation of standardized vaccination, and all parties concerned are not at fault. Chinese CDC officials have said that the probability of adverse reactions of vaccines is one in a million to two. In Japan, this low probability and high pain is compared to the "devil lottery".
According to the doctor, Lin who won the lottery had to rely on drugs to maintain his life.
For the sake of her daughter's illness, this family has long been accustomed to "wandering". In recent years, they have almost traveled all over Beijing and Shanghai from county hospitals to provincial hospitals. Every month, Lin tests his liver function and kidney function at least twice. It is almost a daily thing for father Lin Jincang to go back to the hospital, take medicine and get the number.
They moved twice. When I first came to Beijing, my family huddled in a 4-square-meter hotel room opposite the Children's Hospital. Later, I had to settle down temporarily for long-term follow-up, and the monthly rent plus utilities 1 * * * 3000 yuan.
They are most familiar with drugs: anti-tuberculosis, immune control, and liver protection. The three-story corner cabinets at home are all full. Treatment of soft tissue injury costs three boxes a month, with a box of 4,000 yuan, which has already cost 6,543,800 yuan+0,000 yuan. Under normal circumstances, she takes more than a dozen medicines every day, and the number of colds or other diseases has to rise.
The uncontrollable illness gradually hollowed out this not-rich family. Lin Jincang was born in the countryside and worked in Shenzhen after graduating from junior high school 10 years. With savings and loans, he and his wife opened a youth furniture store in the county. There is little competition in this business in the county. After one year, the net profit can be 30,000 to 40,000 yuan; Before Lin was born, they also opened two branches.
Their furniture store in Xixia was forced to close last year because they needed to spend a long time in Beijing with their daughter for treatment. Because of the heavy debt, the house in my hometown was sold unconsciously.
Lin Jincang has been wearing a pair of sunglasses. Two years ago, because of fundus hemorrhage, his left and right retinas fell off and the detached vitreous body was removed. At present, his left eye vision is only 0.08, and his right eye is almost blind. "At that time, the child was very ill, had no money to treat, and was under great psychological pressure."
Since the accident of 20 10, Lin jincang has become a semi-expert of BCG. In order to better understand his daughter's illness and related policies, he used to browse various websites on his computer and mobile phone, and he had never been online before. After receiving the diagnosis report from experts in Xixia County, Lin Jincang began to seek compensation from the local CDC and * * *.
According to Lin Jincang's memory, Xixia County CDC gave more than 20,000 yuan in compensation in the name of assistance. Since then, the CDC has asked him to apply for compensation of 240,000 yuan in the province according to relevant regulations, and no longer pay follow-up fees.
Xixia county CDC's statement is not groundless. The Regulations on the Administration of Vaccine Circulation and Vaccination, which was passed in the State Council, shows that if there is an abnormal reaction to vaccination caused by vaccination of Class I vaccine and it is necessary to compensate the recipients, the compensation fee shall be arranged by the financial departments of the people's governments of provinces, autonomous regions and municipalities directly under the Central Government in the vaccination funds. Specific compensation measures for abnormal reactions to vaccination shall be formulated by the people's governments of provinces, autonomous regions and municipalities directly under the Central Government. According to the Compensation Measures for Abnormal Reaction of Vaccination in Henan Province (Trial) issued by 20 1 1, if the damage caused by abnormal reaction of vaccination is classified as Grade Ⅱ B, the maximum one-time compensation is 240,000 yuan.
Considering that in the five years at that time, her daughter's medical expenses had reached more than 700,000 yuan, and the cost of follow-up treatment was still unknown, Lin Jincang did not apply for this compensation.
According to him, later, my daughter got a compensation of 6.5438+0.65 million yuan from Xixia County Health Planning Commission and Xixia County CDC. Xixia County CDC also signed an agreement with Lin Jincang, and the CDC compensated 900,000 yuan at one time, including all related expenses such as pre-treatment fee, follow-up treatment fee and rescue fund.
Nevertheless, Lin's huge treatment fee in the future is still a problem. Without hospitalization, Lin still needs nearly 30 thousand yuan every month. Lin Jincang said that a few months ago, he submitted an application for compensation to Xixia County, but he has not received a reply so far.
They had been hopeful about their daughter's illness until the investigation and diagnosis confirmed that it was an abnormal reaction. "I always feel that it is a general tuberculosis, which can be cured sooner or later." Lin Jincang said that if Xixia County CDC can diagnose this as "systemic disseminated BCG infection" earlier, the child will get more effective treatment in time.
He said that doctors at the Shanghai Public Health Clinic told him that his daughter had developed drug resistance since taking medicine at 20 10. The only way is to transplant stem cells and bone marrow, but Lin's current physical condition simply does not have the conditions for transplantation, and they have missed the best transplant period.
In the days when he doesn't go to the hospital, Lin spends most of his time in a rented house in Beijing. Waiting for the children in the community to play games together after school is the only thing she expects. When playing together, she always covers the scar on her chest from time to time.
In May this year, they were told that the treatment plan of western medicine was "the end" for their daughter and "they should be psychologically prepared". In August, Lin Jincang got the latest results: although Lin's chest is no longer festering for the time being, the chest infection is more serious. This time, the sternum bone was seriously damaged, and lymph nodes were covered inside and outside the chest.
The family on the verge of collapse is about to have their daughter's fourth surgery, which will take them as long as a year to face the hole dug in Lin's chest again.
At the end of the work, Lin Jincang once fantasized that "I can finally settle down when I am old." Today, this simple wish is accelerating. He knows that "this family will eventually be crushed", and only hopes that the hole in Lin's chest will no longer spread and will no longer face deeper infection.